Monday, February 21, 2011

Week from Hell

Well,I didn't think I would make it,but I survived one of the worst weeks I have had in a hell of a long time.Seemed like the week took forever to get by.My heart has been aching,not to mention I think I used 3 boxes of kleenex up!Anyway,the point here beingmis that,I'm a little banged up,but I made it,thanks to my great friends.You all know who you are,and one in particular,who is amazing in my book.No judging,no blowing me off,just a lot of listening,and support.All of you helped get me here.Thanks so much.

So,now we are focusing on the BIG Branson"DanceMakers' competition for Willow.She is in two different dance numbers,and I'm sure the competition will be stiff.On another note,we get to stay at the "Chateau on the Lakes" resort,which looks pretty swanky!I will be sure to take some pics,the view looks breathtaking.Mom is coming with me,Thank God!!We are leaving Friday at noon,and will be home Sunday night.I am taking the laptop.Us parents are going to have a LOT of downtime,since when the girls are not in competition,they will be in dance classes.Willow is going to be tired out come Sunday night.;o) She will be great I know,that girl can shake her tail feathers,and everything else too.

As for me,I woke up today feeling pretty dizzy,and groggy,and sort of out of it,the kids are home since it's a school hoilday,but I'm trying to stay down on the couch as much as I can.I havent felt like this in a long time,sort of like I'm drunk,my balance is off..just not feeling good.Lots of aches lately.I am continuing to do my daily Yoga stretching,it does make me feel good,and I know its good for my body.

Not much new to report.I see my family dr tomorow for a follow up on my meds.Hope that appt goes well.I have been in such a state this past week,I dont know how I will be in his office.

TTFN,will update after Branson.....cant wait to see my baby rock out!Woo hoo!

Monday, January 24, 2011

A Brief Update.

Today's not a feel good kind of day for me,so I'm going to try to keep this short and sweet.Last week was my disability hearing before a Judge.I was so scared going into it.He was such a kind and compassionate man!After my hearing he asked to speak with my lawyer.I waited in the hall.My lawyer came out a few moments later,and said :"This very rarely ever happens,but the Judge told me to tell you he was ruling in your favor,and to tell you you are a warrior"I just started crying.You hear about so many people getting disability that don't need it,finally the system works for someone who does need it!I still have to wait for the official ruling to come in the mail,but finally that chapter of my life is over!
Next we had Willows birthday on Thursday.We had spaghetti and cake.We decorated the house,and all the girls wore tiaras!Her party was Saturday,at the local roller rink.She had  some friends,and her sweetie"Nathan" and a fun time was had by all.I never realized how much energy 7 year old's have!Then her best friend Keeley spent the night and we had giggling in the house until well after 1:00 am.I tried to re-coop yesterday but the house was just too loud.Julia,our guest from South Korea will be leaving to go home this Sunday.I will miss her greatly.I am sure it will be awhile before we see each other again.I know she is going to be a success in whatever she does in life.
Thats all for now,the kids have left for school,I'm taking a shower and hopping into a warm bed.

Monday, January 17, 2011

Whats new?

To start with,a big shout out to my very dear BFF,"Fruit".I know you are going through a down time right now,and I am thinking of you every second of the day.I know the way you are feeling,and its a horrible way to feel.I don't know what I can say to make things better for you,except that things will get  better.A year ago was the darkest time in my life,and then I found Face Book,and made so many new friends,including you,that helped pull me out of the pit I was in.Its even harder when on top of being in a pit,you are physically not feeling well,or strong.Its hard to want to do anything.Except Sleep.Anyway,I am here for you,and thinking of you,and sending you my love.

As for me,I am making progress on packing away all these beautiful decorations.Everything is put away now except my 9 1/2 foot tree that is covered with over 1000 lights and hundreds of ornaments....This is going to be the hardest job to do.I just get my strength back,and poof,taking that tree down is going to do me in.I plan on attacking it through this week,and having it down by weeks end.

Tomorrow is a busy day,I see the Hematologist to check on my anemia,and tomorrow afternoon is my disabilty hearing.I pray all goes well.I cant believe its finally my turn for court.I will update after!~

Monday, January 3, 2011

The New Year

Happy New Year everyone.As I said in my last blog update I am going to be better about writing and keeping my blog updated in 2011.I have high expectations for this year.It has to be a better year than 2010,it seems that I spent most of 2010 sick and trying to get a correct diagnosis for my illnesses.Instead of the usual resolutions I always make,such as exercise more,lose weight,which are great,don't get me wrong.This year,I have decided its more than just my physical appearance that needs to be taken care of.This year I am working on the inner Julie.My goals for 2011 include,learning more patience,with myself and with my family.Not to fly off the handle so easily.Not to sweat the small stuff.Enjoy the time I'm spending with my kids,even if I am watching the Disney channel with Willow.More "carpe diem";Seize the day,and enjoying it.More smiles,More laughing,less crying if I can help it.Trying to get to church more.Going to communion just makes me feel peaceful inside.Not going to freak over a little bit of dust.I am a good housekeeper,and I am doing very well at keeping my house clean despite chronic and debilitating health conditions.I am going to be more optimistic,be thankful for every new day I am given.My disability hearing is Jan 18th.I hope I have an understanding judge,who understands dysautonomia,pots,and inappropriate sinus tachycardia,Premature ventricular contractions,along with fibromyalgia,lupus,migraines,irritable bowel syndrome,g.e.r.d,and everything else I deal with.I hope the hearing goes well.Optimisim is my new priority,and I hope I can make those around me feel good too.O.K...enough rambling for today....Thanks for reading,and listening.<3